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12:37pm Monday 18th August 2008
The boss of the NHS's drug approval body has called on local healthcare trusts to end Britain's 'postcode lottery' row.
Andrew Dillon, chief executive of the National Institute for Health and Clinical Excellence (Nice), said Primary Care Trusts (PCTs) should be consistent when deciding whether to make funds available for medicines.
His comments follow growing public anger over the number of drugs and treatments being blocked by Nice.
Mr Dillon told the BBC's Panorama: "It shouldn't make any difference where you live. There ought to be a common basis for making decisions about exceptional circumstances and I think anybody who uses the NHS for their care is entitled to expect that.
"What patients need to do is to find out from those who are making the decision what the basis of that decision is, and if they don't think it's reasonable, if they don't think it compares appropriately with decisions that are taken elsewhere, ask 'why not?'"
NHS trusts have a legal obligation to provide treatments approved by Nice. But, in the absence of such approval, a patient must appeal to a committee at the local trust which can choose to fund it as an exceptional case.
Those who are refused must settle for a less effective treatment or pay privately for the drugs - at the risk of having all other NHS care withdrawn.
Cancer consultant Mark Saunders, from Manchester, claimed there were huge inconsistencies. He launched an investigation after cancer sufferer, Naomi Kiely, 34, claimed she was unable to get potentially life-saving drugs because her PCT would not approve it.
Mr Saunders said: "If you have a patient from Cheshire they have a very good record. Most of the time we apply to Cheshire they tend to fund patients that have exceptional circumstances. If we apply to the Manchester Primary Care Trust then in the eight applications we've made they've only accepted one for funding in 2006."
During the Panorama programme Mr Dillon also hints that Nice may not be able to meet the Health Secretary Alan Johnson's recent pledge to try to bring decision-making on new drugs down from an average length of two years to just three months.
More colleagues of Barbara Knights have voiced their messages of grief and condolence at the death of the "selfless and irreplaceable" cleaner who had worked at the Dragon LNG site since the beginning of the project.
Do you know a marvellous mum? Are you one yourself? Here's your chance to nominate either yourself or a role-model mother you know for the Newsquest / Netmums Mum of the Year competition.
As Christmas draws closer and people in Pembrokeshire start to think about soldiers from the county who are posted overseas, we at the Western Telegraph want to help you get your messages of support and solidarity and Christmas cheer to them.
High feed prices are pushing up the cost of Christmas turkeys — but producers in Pembrokeshire are reporting good demand from consumers after warnings that festive poultry may be in short supply.
The dung beetle population on a Pembrokeshire farm is to be examined in detail to establish the impact of wormers on the species.
The Welsh national special needs championships took place on Sunday, November 9th at Cardiff central youth club.
Once again, due to injury and captain Molly Furnival-Doran away on international duty, Manorbier girls were only able to field nine players against championship rivals Llanelli.
More than 30 years ago, the Clarbeston Road Players was set up by Chriswen Vaughan who lived in the village.
Theatr Mwldan will be alive with the sound of music this week as Opera Teifi takes to the stage with Cole Porter’s Kiss Me Kate.
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